on 4-year-Old Boy Growing Second Skeleton! at 11:46 10/11/2008

I am a mother of an child with FOP. What you should know is that the gene for this genetic disease was found in April 2006. But even better, it is the gene that essentially controls bone growth. A cure to this disease will mean a cure for many, may other bone related diseases such as arthritis, osteoporosis, spinal cord injuries, and many others. www.ifopa.org for more info or to donate.