on A Worthwhile Cause at 10:29 12/05/2008

Thanks for putting a spot light on this amazing cause. I know we all have our cause of choice, but does that make any cause more or less worthy? If I could afford to, I would fight for any cause that improved the life a child. My son, Remy, is 14 months old and suffers from Tuberous Sclerosis. In June of last year he had to have 40% of the right side of his brain removed because of brain tumors that cause horrible, and constant siezures. I had to watch my 9 month old son lay in a bed while tethered to an EEG machine by his brain for almost a week before they could go back in and remove the brain tissue that had been damaged (one entire cortex was deemed "dead" as a result of his seizures). DaisyBaby, I hope you never have to experience anything near what we have. I understand that you can't connect, but please don't assume or claim that my innocent baby isn't worth fighting for. We are all valuable, and all deserve a chance at a quality life. Thank you Perez.