on A Worthwhile Cause at 15:51 12/02/2008

Maybe Perez didnt explain this disease well enough for you idiots to understand! My daughter has TSC. She was born with 2 heart tumors and multiple tubers in her brain. Her lungs, kidneys and skin will probably be affected with tumors in her lifetime. It affects all major organs. Cassidy has had a total of 4 brain surgeries including a hemispherectomy where they removed the left side of her brain in June, she is 4 yrs old!!!! No one has heard of this disease until it is in their lives and more people have it than cystic fibrosis and Lou Gehrigs. Thanks Perez for posting this info. If anyone with a brain wants to read about my daughters story you can read it at www.caringbridge.org/visit/cassidyconway